Wait…data that isn’t de-identified or is de-identified?
Blade_of_Boniface on
>The NIH is also working on an agreement to secure Medicare and Medicaid data, according to Bhattacharya, who said that select outside researchers will be able to access and study, but not download, the collected data from the registry.
>Kennedy, a longtime critic of vaccination, has made the study of autism one of HHS’s primary goals under his tenure. The department’s Centers for Disease Control and Prevention has launched a study to examine links between autism and vaccines, even though medical experts have long debunked any such connection.
>The news that HHS is putting together a registry and accessing Americans’ private medical records raises all kinds of privacy concerns. HHS and its departments, including the NIH and CDC, have laid off thousands of employees in the past few months, possibly giving Kennedy and Bhattacharya, also an anti-vaxxer, more compliant employees to push their agenda.
>Kennedy has drawn criticism from mainstream medical researchers by calling autism “preventable” and made the outlandish claim that he can find a cure for the condition by September. On top of that, his vaccination stance has led to a haphazard effort to combat a growing measles outbreak across the country, as he gives conflicting recommendations on vaccinations versus quack treatments. What kind of conclusion will such an approach yield in his autism crusade?
This is the issue with medicalizing neurodivergence. I’m not saying that neurodiversity shouldn’t also have accommodations and therapeutic approaches but when we start talking about autistic people as “diseased” then it becomes easy to justify “cures.” Aside from the obvious breach of privacy, this also encourages diagnosing people without their informed consent. In the current state of American healthcare, it could be used to justify involuntary institutionalization and medication. There’s already a thriving psychiatry-industrial complex.
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!ping health-policy
Wait…data that isn’t de-identified or is de-identified?
>The NIH is also working on an agreement to secure Medicare and Medicaid data, according to Bhattacharya, who said that select outside researchers will be able to access and study, but not download, the collected data from the registry.
>Kennedy, a longtime critic of vaccination, has made the study of autism one of HHS’s primary goals under his tenure. The department’s Centers for Disease Control and Prevention has launched a study to examine links between autism and vaccines, even though medical experts have long debunked any such connection.
>The news that HHS is putting together a registry and accessing Americans’ private medical records raises all kinds of privacy concerns. HHS and its departments, including the NIH and CDC, have laid off thousands of employees in the past few months, possibly giving Kennedy and Bhattacharya, also an anti-vaxxer, more compliant employees to push their agenda.
>Kennedy has drawn criticism from mainstream medical researchers by calling autism “preventable” and made the outlandish claim that he can find a cure for the condition by September. On top of that, his vaccination stance has led to a haphazard effort to combat a growing measles outbreak across the country, as he gives conflicting recommendations on vaccinations versus quack treatments. What kind of conclusion will such an approach yield in his autism crusade?
This is the issue with medicalizing neurodivergence. I’m not saying that neurodiversity shouldn’t also have accommodations and therapeutic approaches but when we start talking about autistic people as “diseased” then it becomes easy to justify “cures.” Aside from the obvious breach of privacy, this also encourages diagnosing people without their informed consent. In the current state of American healthcare, it could be used to justify involuntary institutionalization and medication. There’s already a thriving psychiatry-industrial complex.
https://preview.redd.it/gku8ppqe1gwe1.png?width=238&format=png&auto=webp&s=7dc911a12cfc728b041e7863bb2ce70fefd7ca62